A FUNDRAISING group has been set up in memory of a tragic St Helens youngster.
Six-year-old Lillie Thompson, a pupil at Lansbury Bridge School who had non-verbal autism and hydracephalus, passed away in her sleep last September.
Since then, devastated friends of the Sutton youngster and her family have set up the Frilly Lillies fundraising group to help other local disabled children and their families enjoy an extra-special adventure holiday.
The plan is for as many families as possible to visit the Calvert Trust in Kielder - which Lillie loved when she visited last Easter.
Frilly Lillies co-founder Nichola Storey said: “The adventure holiday we had with Lillie last April was the best holiday any of us had ever had. And we want to recreate that so other disabled St Helens children and their families can benefit in the same way.
“Having a disabled child can be quite isolating at times. My son Ryan has non-verbal autism with a very low level of understanding. But last year’s holiday helped us all form a wider support network than we had before.
“Lillie’s death was a terrible shock for everyone who knew her. I’d known her since she was a baby because she was the same age as Ryan. We all felt totally helpless.
“But raising funds to send more disabled youngsters on the holiday of a lifetime is a great way to continue Lillie’s memory. Her family are really supportive of what we’re doing - it makes them happy that other children are going to benefit in Lillie’s name.”
Disability is no object for visitors to the Calvert Trust in Kielder, Northumberland, who can enjoy activities like zip-wiring, abseiling, canoeing, sailing and archery.
And, despite not being a registered charity yet, the Frilly Lillies Foundation has already raised around £5,000 via tireless bag-packs and charity race nights.
It is hoped that the visit to the Calvert Trust will now become and annual pilgrimage.
Nichola, of Haydock, who runs the Frilly Lillies group alongside Lauren Roberts, whose 10-year-old son Harry has quadriplegic cerebral palsy, added: “We’d like people to apply to go on this year’s holiday. To be eligible, you must be a St Helens resident, have a disabled child aged five or above and be classed on a middle or high rate of Disability Living Allowance.
“We’d also love to hear from any businesses who may want to sponsor us.”
To get in touch with Frilly Lillies, e-mail: firstname.lastname@example.org